The Company
The St. Anna Kinderkrebsforschung – Children’s Cancer Research Institute (https://ccri.at/mission/) was founded in 1988 with the overall goal of improving treatment options for children with cancer through basic research and translational. The CCRI is closely affiliated with St. Anna Children’s Hospital (the largest blood-oncology clinic for childhood cancer in Austria). The CCRI currently has 16 research groups focused on a series of immunotherapeutic approaches and on a selected spectrum of pediatric oncological diseases such as Leukemia, Neuroblastoma, Ewing’s sarcoma, Osteosarcoma, Wilms tumor, Lymphoma, Langerhans cell histiocytosis and relevant secondary pathologies in immunocompromised patients such as mycoses and viral infections.
The Challenge
The St. Anna Children’s Cancer Research Institute (CCRI) is the promoter, in collaboration with ERN Paedcan (https://paedcan.ern-net.eu/) and the European Society for Paediatric Oncology (https://siope.eu/), of the ERN PaedCan European Standard Clinical Practice Registry project.
The goal of the ESCP project is to develop approved clinical recommendations that reflect current best practices for each common childhood cancer type, improving outcomes and increasing childhood cancer survival and quality of life.
The solution
The ESCP registry is based on the MyHealth web platform, which implements patient pseudonymisation according to EU guidelines and is designed to facilitate data collection and management from over 400 European clinical centres, with the aim of enrolling over 4,000 patients per year.
Results
– Develop approved clinical recommendations that reflect current best practices for each common childhood cancer type
– Improved survival and quality of life of childhood cancer
– Improved quality of data collected by hospitals