INSTITUTO DE MEDICINA MOLECULAR JOÃO LOBO ANTUNES (IMM)

The Company

The iMM – Instituto de Medicina Molecular João Lobo Antunes is a private non-profit research institute that offers a vibrant scientific environment, aiming to nurture innovative ideas in basic, clinical and translational biomedical research. The strategy pursued by the Institute is based on the promotion of excellence, leveraged by high-quality human resources, increasing expenditure in infrastructures and knowledge transfer to society.

The Challenge

The Instituto de Medicina Molecular João Lobo Antunes (IMM) intends to promote the development of a project for the standardization, in the OMOP COMMON DATA MODEL format, of patient data contained in the biobank managed by the institute and data collected in the Portuguese registry of rheumatic diseases of the Portuguese Society of Rheumatology (SPR).
For the development of this project, the IMM participated in the European tender 5th Data Partner Call coordinated by the EHDEN Consortium (https://www.ehden.eu/open-calls/05-2021-5th-data-partner-call/ ).

The objective of the European tender “5th Data Partner Call” is to convert patient data contained in Electronic Health Records (EHR), registries and other data sources managed by European hospitals, according to the OMOP COMMON DATA MODEL standard, creating an integrated structure of the collected data, facilitating their use for a variety of objectives, improving and accelerating research and decision-making in healthcare, and gaining global advantage.

The solution

DataRiver, thanks to the experience gained in the field of Big Data integration and Clinical Data Harmonization, is able to support healthcare facilities in the process of standardization of health data with respect to the OMOP Common Data Model standard.
DataRiver supported the Instituto de Medicina Molecular João Lobo Antunes (IMM) in the execution of the project, carrying out the data cleaning, processing and mapping of data sources according to the OMOP Common Data Model format required by the project.

Results

IMM has developed the project of standardization of patient data from the Portuguese Registry of Rheumatic Diseases in the OMOP Common Data Model format. The project represents a great opportunity to increase patient participation in the Portuguese Rheumatic Disease Registry, develop a dedicated area for use by patients with PROM, and improve research in the field of rheumatic diseases through synergy with others european clinical centers members of the IMI EHDEN consortium.