DataRiver is proud to announce that the PARTNER Registry (Pediatric Rare Tumors European Registry) went live on 2022.
The PARTNER Registry, coordinated by the Department of Women’s and Children’s Health of the University of Padua in collaboration with ERN Paedcan and the European Society for Pediatric Oncology (SIOPE), is dedicated to children and adolescents with very rare cancers, with the aim of linking the existing national registries of Italy, Germany, France and Poland and provides a registry for those European countries without one.
The PARTNER registry (https://www.raretumors-children.eu/partner-project/about-partner/), based on the MyHealth web platform developed by DataRiver to provide clinical centers with a secure and multilingual tool, guarantees the pseudonymisation of patients according to EU guidelines and is designed to facilitate data collection and management for more than 50 European clinical centers spread over 15 European countries.